Well, today was the first day of training for Mother's Day Out at the church. It was WONDERFUL to see everyone and this was really the first time that everyone got to meet Blair. She did great as did Baylee. I'm so excited to start back again. This will give me a little break from the girls a few days a week and it's a great opportunity to serve other kids!
My computer is still messed up. So, if I don't respond to an e-mail don't worry... I will get to it. I cannot post on my other blog page and I can't visit my friends that have those blog accounts... for that I apologize and hopefully I will get it fixed soon. I miss you guys!
Other than that... tomorrow we have Physical Therapy and then Friday I'm working at the church. Saturday afternoon we have a birthday party to go to for Baylee's little friend that she took dance with last year. We have Supper Club Saturday night and then we are going out for another birthday party (adult birthday) that night. So, it will be a busy day. :)
The past couple of days I've been making curtains for Baylee's room. We are doing more of a Zebra with the dark pink theme in there. They look GREAT! I'm very impressed with my sewing abilities on this one! :) I will have to post some pics out here when I get them done!
Anyway... that's about it... I hope everyone is having a great week!
Hugs - Tiffany
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My Peepers!
Omphalocele and PPH/RVH
This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
1 comment:
aren't the MDO ladies great!? i'm excited you will have gus in class. don't let susan spoil him rotten!;-)
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