Baylee and Blair: New pics of Blair's belly!

Wednesday, November 19, 2008

New pics of Blair's belly!

Here are some pics I took last night of Blair's belly! You can see in some of them how floppy it is. The compression wraps will hopefully help with this!

We are leaving Thursday afternoon to make our trip to SL. I'm excited to get this ball rolling! Everyone please pray that they can help and we will be able to get this shrunk down! It will make her surgery SO much easier next year!

Hugs - Tiffany

7 comments:

Gully Girl said...: Wow, Tiffany, I really do hope they can do something to help her! It looks like it would be a little painful, too. Good luck!!!; November 19, 2008 at 8:49 AM
Miss Thystle said...: Poor little thing! I KNOW SL will help you!; November 19, 2008 at 9:54 AM
kellyk said...: wow it has gotten bigger. i'll be praying for you guys!; November 19, 2008 at 12:09 PM
Katy said...: It seems like it keeps getting bigger. So great that she's still a smiley, happy little girl. Isn't that always the way??? I can get upset about the littlest thing and Charlie deals with so much and still has an amazing attitude. I could take a lesson from these kids.; November 19, 2008 at 10:09 PM
Gully Girl said...: I'm glad she's so happy-go-lucky. I'm sure that makes things a little bit easier for you!; November 20, 2008 at 10:01 AM
Anonymous said...: aWW...Poor baby :( Is it painful for her? I just couldn't imagine! It just makes my heart ache.

Just a little tip, the internet is not a very nice place, those pics of Blair in the tub should be censored. Even pics I posted of my son in the tub I censored, my Facebook may be private, but you never know who's lurking. Just thought I'd add that...also good luck with everything! I wish you all the very, very best! Oh and if I don't make it back before Christmas - MERRY CHRISTMAS! <3; November 25, 2008 at 12:29 PM
Baylee and Blair's page said...: Hi Amanda! You are so right about the picture. I guess normal people like you and I don't have it in our mind that someone would be looking at her in "that way". I just removed the picture! At least I don't think about things like that.

You have a wonderful Christmas as well!

Hugs - Tiffany; November 28, 2008 at 7:44 AM

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Omphalocele and PPH/RVH

This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.

Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!

She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.

I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!

Baylee and Blair

Wednesday, November 19, 2008

New pics of Blair's belly!

7 comments:

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Omphalocele and PPH/RVH

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