Well, I didn't get to fish on Saturday like I wanted to! :( Britt's aunt passed away last Wednesday (on my birthday) so we had to go to Memphis early Saturday morning for the funeral. We are actually still in Cabot because Baylee has an appt tomorrow at AR Children's to have another Echo done. I don't know why they are wanting to do another one already. After all, they can't measure the pressure in her heart/lungs without doing a heart cath. So, I guess we will find out tomorrow why they are wanting to do that.
I had a wonderful Mother's Day! Everyone also celebrated our birthday's yesterday.
I'm still waiting to hear from the Hypertension Specialist in Boston. Hopefully they will be calling soon to get Baylee's appt scheduled!
I hope all of you Mom's out there had a wonderful Mother's Day!
Hugs - Tiff
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Omphalocele and PPH/RVH
This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
3 comments:
I hope you had a great day, too!!You deserve a little pampering after all the crap you have to go through all the time with the girls' health problems.
Bummer about Britt's aunt. That's sad.
I'm sorry to hear about your husband's aunt.
Happy Belated Birthday and Happy Mother's Day as well! :-)
Glad you had a great mother's day! I hope the appt. today goes well and that boston calls you soon!
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