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Praying for Ryan
Praying for Karsie
My Peepers!
Omphalocele and PPH/RVH
This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
7 comments:
too cute. Looks like she is taking after her mommy in the kitchen. I miss seeing you guys and hate our schedules have been so off. I am trying to do better by keeping up with your blog more and hope to see you soon.
That last picture of Blair is hilarious! I can tell she *really* enjoyed her cupcake!
I'm sure they're in the mail, but my share of the cupcakes haven't arrived yet. Please look into this.
Oh, you made them! The girls look like they're in cupcake heaven.
What adorable photos! Looks like the cupcakes were a hit.
Too cute. I love the last one. Gorgeous.
Tiffany Hi ............
No need to say you've not stopped by me Space for a while. I stop by y'alls 2 spaces about once a week.
And I see how busy your two are with your family. I say me prayers/thanks for Gods Love and Protection, not only for me , but me friends and family.
In sad times turn to Jesus, in Happy times, give praise.
Again I see, how busy you are, and it will be allright, one day. Take care of your family, your "friends' will allways be here.
Best to all of you, and enjoy every moment of Happiness......
Bill Walden
PS......I tried to send a e-mail through spaces.live, but it got kicked back.
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