Subscribe to:
Post Comments (Atom)
skip to main |
skip to sidebar
Background
Praying for Ryan
Praying for Karsie
My Peepers!
Omphalocele and PPH/RVH
This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
3 comments:
The last one is my favorite (so far).
Sounds like your appointment with St. Louis went well. They are supposed to be a spectacular Children's hospital.
It's definitely easier to travel with another adult. I don't think I could make a long trip by myself with Charlie--he'd riot!
Tiffany, I've enjoyed reading your blog since a link From Bayta or Karsie sent me here. I also was really impressed with the Jackson Graves foundation you mentioned in Karsie's comments (http://www.jacksongraves.org/), and wish I had money to give. I can't seem to e-mail you from your blogger profile.
Baby Jackson was born 6 days after my healthy 5 year old Jonathan--the only child we've been gifted with on earth. Have Jackson's parents had any more children?
Bethany... my e-mail is Tiffany.Morris@att.net
Yes, the Graves' have had 2 more children. Charlie and Henry are their names. Here is her blog page. http://charliegraves.blogspot.com/
Also, another friend of mine in our area had a child with a Giant O that passed away last year at 10 months old. He was their 4th child and she just found out she is pregnant again!
Thank you for your kind words! They mean a lot to me!
Hugs - Tiffany
Post a Comment