We are getting all geared up here to go Trick-or-Treating. We are heading up to the Wal-Mart Home Office in a bit to do some pre-trick-or-treating with my Mom. The girls... well, Baylee... is SUPER excited that she gets to wear her costume early!
Then, we will go around our neighborhood tomorrow night and gather more candy! I'm glad the weather is going to be nice tomorrow for it. We usually luck out with nice weather around Halloween so it makes it nice for the kids.
Which also makes me want to go take some pictures of the girls. I got a CUTE outfit for Blair yesterday at Target and think I will go back and get this dress that I noticed would be cute on Baylee. They kind of match... so we will see how they turn out. I've scoped out some abandoned bridges in our area that I think I will use as the backdrop. I'm hoping for a bit of overcast weather, but I think it's suppose to be sunny. So, we will see I guess. I have a cute hat for Blair to wear. It was actually one of Baylee's hats when she was little. I don't have many pictures of either of the girls with it on.
Till then...
Hugs - Tiff
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Omphalocele and PPH/RVH
This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
1 comment:
I hope you all have a wonderful time. Unfortunately, it is supposed to rain here:(
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