Baylee and Blair: GOOD news!

Friday, January 29, 2010

GOOD news!

Baylee had her 2nd Heart Cath on Tuesday. Her heart pressure before we started meds were 55. After this Heart Cath I'm excited to report that her pressure number was 31!!!!!!!!!! Can I get a whoop whoop???? Holy cow!!! We couldn't be more happy about this. Plus, she didn't spike a fever like she did last time and she did great in the hospital. Even took out BOTH her IV's in her foot all by herself. YES, the nurse let her take out her own IV's to show her it wouldn't hurt. Whatever it takes right?

Right now Britt took Baylee sledding. It's been snowing all day and is suppose to snow all afternoon and tonight!

Worked last night, tonight, tomorrow night and Sunday night.

Hugs - Tiffany

7 comments:

pixiemama said...: AWESOME!; January 29, 2010 at 2:22 PM
Lacey said...: Yeah thats great news. What a big girl!; January 29, 2010 at 4:13 PM
Robyn Bennett said...: awesome news. She is an amazing little girl.; January 29, 2010 at 5:06 PM
Evil Twin's Wife said...: Great news!; January 29, 2010 at 7:23 PM
toni said...: This is the best news ever! Hope you guys are doing okay with all this ice and snow.; February 1, 2010 at 10:12 AM
Gully Girl said...: Great news!

How is work with you going out of town for the girls' appointments? I hadn't thought about that before.; February 1, 2010 at 11:33 AM
Paige said...: That is such wonderful news!! Yay!!; February 1, 2010 at 4:41 PM

Omphalocele and PPH/RVH

This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.

Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!

She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.

I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!

Baylee and Blair

Friday, January 29, 2010

GOOD news!

7 comments:

Background

Praying for Ryan

Praying for Karsie

My Peepers!

Omphalocele and PPH/RVH

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