I went to visit Blair this afternoon and also to feed her bottle to her. She did great! She took 24ml of 34ml within 10 minutes. Dr. Arrington and Nurse Practitioner Mike came by to check on Blair. They are still amazed that everything is still going well with her. They have increased her bottle feeds to 3/day. It's still 10 minutes per bottle feed. That's because she is just practicing and they don't want to wear her out! She weighs 6lbs now! She is still wearing preemie clothes, but they are just fitting. I took more outfits up there today along with the blankets I had embroidered for her with her name on them!
They are scheduling her MRI (for the spine) for next week! And, do you remember what I said about that... they would do it right before we went home? Well, Dr. Arrington seems to think we will be outta there in 10 days! I AM SO EXCITED! I want to get home and clean clean clean and finish getting her room ready before she comes home. Britt keeps telling me there is nothing left to do... but, there is! There are still camo/hunting pictures hanging on her walls and we can't have that! :) I just need to put some finishing touches on some things and re-do Baylee's room while I'm at it. I told her I would do that for her and I would rather do it before she comes home!
Anyway... please pray that Blair continues to do well with her bottle feeding and doesn't have any problems with it!
Hugs - Tiffany
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My Peepers!
Omphalocele and PPH/RVH
This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
1 comment:
Yay for almost home! It will fly by. Of course, now you have to do all those things you didn't get to before you had the baby. Charlie's room was crammed with stuff for the longest time.
I will say some prayers specifically for that MRI.
Are you still using the Simply Thick? Do you think you'll be using it when you go home? Let me know!
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