Just thought I would post some pics of Blair's wrap that we are doing right now.
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Praying for Ryan
Praying for Karsie
My Peepers!
Omphalocele and PPH/RVH
This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
9 comments:
She is just so darn cute! Hope the wrap helps.
I'm so excited for Blair! I just know this is going to help! Your christmas decorations are gorgeous, when are you coming over to do mine?
Is this the compression wrap that will help start pushing everything in?
Your house looks awesome. You guys did a really good job decorating.
Hey Shelli!
There really isn't any compression with it. The ace wrap is loose and just kind of keeps everything in place. So, it won't get "smaller" until after the surgery.
Thanks! It went quick with Britt and Baylee helping me decorate! :)
I hope you guys had a wonderful Thanksgiving!
Hugs - Tiffany
My your so ahead of me. The your home looks wonderful.
I am so happy finally that you know whats going on with Blair's surgery and a all.
Wishing you and yours a wonderful holiday.
Kerry aka Hope from clubsammichcafe
Thanks for the photos. I've been wondering how her O has been managed. I will be thinking of you all from MRI through surgery.
Thanks for the decor photos, too! Very pretty and very inspiring. Very enjoyable to see such pretty celebration of the season AND a 3-year-old-going-on-12 participating!
Barbara
What a sweet little thing she is--aren't you loving this age, where they're so happy and cuddly all the time? The decorations look fantastic! I love your tree!
The bottom pic is WAY cute...she looks like a chubby little old man...LOL
How sweet is she?
She looks like a little Santa in that second picture! With belly!
Prayers from now til the nineteenth!
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