Okay... until today I hadn't thoroughly explored all of the links on Google when I put in Right Ventricular Hypertrophy. Let's just say I wish I hadn't, but I'm glad I did because it makes me realize how serious this condition is!
As I'm typing this in and reading all of the links I came across one little paragraph that has changed my life... the way I think... and the emotions started rolling... right down my face.
"The median survival rate for primary pulmonary hypertension after diagnosis is less than 2 1/2 years. Right Ventricular Hypertrophy is a condition of advanced PPH and therefore, once it develops, the survival rate is shorter. Medical management of PPH consists of anticoagulants, oral vasodilators (which are effective in only 20 - 25% of cases), continuous intravenous infusions of prostacyclin, diuretics, and supplemental oxygen."
OMG....OMG.... so, I freak out of course and call my Pediatrician's office and talk to the nurse. She freaked out that I was researching and got our Echo appt in Lowell (here by our house - it's a branch of AR Children's) on May 20th. WHAT? Can you not get her in sooner... so I call down there and see if I can get on a cancellation list. Well, they don't have one since they have 5,000 Cardio patients. But, she said I could call everyday and see if they have any cancellations. The girl that told me this is the only scheduler and I guarantee I will call so many times she will dream of me.. and my name!
Britt's aunt suggested that I take her to Children's ER and demand to see someone in Cardiology. I'm thinking I might just do that. After all, her appt would get moved up just a tad don't ya think?
I normally don't ask for much, but can you guys PLEASE pray for Baylee? Pass around my blogspot and do whatever you can to get people to pray for her!
I couldn't imagine my life without her... as any Mother would feel about their child!
Hugs - Tiffany