So, I've been up since early this morning making phone calls. I also stayed up late last night researching Cardiology clinics at the different Children's Hospitals. Children's Hospital of Boston is ranked #1. I called and spoke with a nurse in the Cardiology clinic this morning. She was WONDERFUL and told me to fax Baylee's EKG results to her. I called her a bit ago and she just got them so she was going to find a Dr. to read them. She said sometimes there can be false positives so she wants them to look at it to be sure. She also told me I needed to get her Echo moved up from May 20th. So, the Super Mom that I am DID JUST THAT! She will have an Echo tomorrow here at the local hospital and those results will be sent to Little Rock Children's and I will also get a copy to send to Boston to have them look at it as well.
AR Children's Cardiology is ranked #28 and St. Louis is ranked #17.
Whatever it takes I'm getting it done for my daughter. If that means getting on a plane and flying to Boston to get the best care for her that's JUST what I'll do!
Hugs - Tiff
I spoke with the nurse again this afternoon and she is going to call our Pediatrician to get our Echo. They are starting to upset me. She said that the Cardiologist looked at the EKG and it has been confirmed that she does have Right Ventricular Hypertrophy. Echo is next and then we go from there... Once again I'm requesting LOTS of prayers!
Echo is tomorrow morning at 9am! It's at the Lowell Clinic (UAMS Center for Children - part of AR Children's). From there the results will be faxed and mailed to Children's Hospital of Boston where the nurse will call me back tomorrow afternoon for the results. I spoke with the nurse again a minute ago and I did ask what causes this... if she was born with it, etc. She said there are no known causes, but that would have to be something we discussed with the Dr. Fair enough. Either way we are getting some results tomorrow and that makes Momma HAPPY!