Yes, she does have Primary Pulmonary Hypertension. Sorry, I forgot to include that!
Well, they finally released Baylee last night around 7:30. We stayed at Britt's parents house in Cabot because we still had stuff to pick up. We got home a couple hours ago and MAN it feels GOOD!
Here is what we know for now. They still don't know what's causing her seizure/passing out spells. They are leaning towards passing out spells and not seizures since it's only when her heart rate is really high. Every test came back normal! They think she has slight asthma.... which doesn't surprise us because she has had the symptoms all along since she was little.
Sildenafil (Viagra) every 6 hours... YES, even through the night!
Zyrtec - for allergies only once per day
80mg baby aspirin to prevent blood clots in her lungs
Flovent - twice per day for asthma
I spoke with the Pulmonary Hypertension specialist in Boston... her nurse actually. She said she would be waiting for all the reports and get back with me as soon as Dr. Mullen reads them over. She said then we would schedule our trip to Boston after she has a chance to review everything.
I want to thank everyone for the continued prayers and support! You guys are awesome!!!! I will keep ya'll posted!
Hugs - Tiffany