Yes, she does have Primary Pulmonary Hypertension. Sorry, I forgot to include that!
_______________________________________________
Well, they finally released Baylee last night around 7:30. We stayed at Britt's parents house in Cabot because we still had stuff to pick up. We got home a couple hours ago and MAN it feels GOOD!
Here is what we know for now. They still don't know what's causing her seizure/passing out spells. They are leaning towards passing out spells and not seizures since it's only when her heart rate is really high. Every test came back normal! They think she has slight asthma.... which doesn't surprise us because she has had the symptoms all along since she was little.
Her meds:
Sildenafil (Viagra) every 6 hours... YES, even through the night!
Zyrtec - for allergies only once per day
80mg baby aspirin to prevent blood clots in her lungs
Flovent - twice per day for asthma
I spoke with the Pulmonary Hypertension specialist in Boston... her nurse actually. She said she would be waiting for all the reports and get back with me as soon as Dr. Mullen reads them over. She said then we would schedule our trip to Boston after she has a chance to review everything.
I want to thank everyone for the continued prayers and support! You guys are awesome!!!! I will keep ya'll posted!
Hugs - Tiffany
Subscribe to:
Post Comments (Atom)
8 comments:
I'm so glad your home. Does she have primary pulmonary hypertension?
so glad you're all home! Hope Miss Baylee is feeling a bit more spritely.
Tiffany, I am so glad you are home. Prayers come throughout the day from my family to yours. I think you are an Awesome MOM! I pray that God Continues to give you Strength. Take care, and God Bless You and Yours. Pam
I'm SOO happy you guys are all home! I'm sure you're relieved to have everyone back in their normal surroundings. I'm still praying for Baylee, that the docs get everything figured out.
Yay for being home! I know you must be relieved. I have blood clotting issues too and also take a baby aspirin a day. If she can swallow it whole (like with something to drink), have her do that. Chewing those everyday will damage tooth enamel. {{{HUGS}}}. I've been so worried about you all!
I know you are happy to be home! I hope Baylee is feeling okay and that things stay calm for a little while.
you ok, mama? i'm so glad you're home & am hoping the specialists figure this out SOON.
love.
I am so glad to hear you are back home. We will continue to keep all of you in our prayers!
Post a Comment