Once again I'm totally frustrated with our Cardiology clinic in Little Rock. They have drug their feet too long in my opinion. So, I feel that it is time to leave that behind and move the girls local Cardiologist to St. Louis. After all, they are ranked #6 in the nation and so far we have had wonderful experiences with that hospital.
Baylee will remain seeing Dr. Mullen in Boston for her Pulmonary Hypertension and use the clinic in St. Louis for non-emergent things.... like Echo's, EKG's and sleep studies.
Blair will have a new Dr. to treat her Dextrocardia. Which, as of right now, doesn't affect her. Her heart works normal. It's just on the wrong side of her chest.
I have taken it upon myself to call St. Louis to start the process of a 2nd sleep study. Little Rock can't seem to call me back about one... so forget it. They have had over a month to get one scheduled and I have still heard nothing.
The only person we will continue to see in Little Rock is Dr. Lyle. He is Blair's Neonatologist and an AMAZING Dr. He truly cares about his patients and FOLLOWS-UP with the parents. Something that is near and dear to me.
You know... I rarely vent about these type of things.... I just go with the flow and stay strong to get things done for my kids. Yes, I have switched surgeons (which saved my daughter's life) and we found the best of the best in Boston for Baylee's Pulmonary Hypertension. I guess I'm just not taking someone's crap anymore. This is MY CHILD and I will do whatever it takes to get them the BEST care. If someone doesn't act like they care then they obviously have too much to do or just don't care. I shouldn't have to wait around FOR OVER A MONTH for someone to call me back to get something like a sleep study scheduled. Especially when they are wanting that sleep study to happen BEFORE possible tonsil removal and BEFORE Baylee's Heart Cath in November.
I'm tired... worn out... and frustrated with all of this! Hopefully this will be the end of having "bad" Dr's!