I called to check on Blair this morning and the Nurse Practitioner was at her bedside. They are changing all of her feeds to PO (bottle) feeds!!!!! She has taken all of her bottles since Thursday. I guess I just needed to get out of town for her to show off for me! :)
I'm packing right now and Baylee and I will be heading back to Little Rock this afternoon. I'm taking her to the Dr today at noon. We have an AWESOME walk-in/spa/clinic right down the road! I love it that they are open on the weekends for special trips like this! She has had allergy gunk for the past week and no matter what I give her she's not getting better. I have allergy issues as well and woke up this morning unable to talk! Nice huh? I'm sure Britt's not complaining... hehehe
I hope that everyone is enjoying this gorgeous weather we are having in Arkansas. It has been gorgeous all weekend!
Hugs to all - Tiff
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Omphalocele and PPH/RVH
This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
1 comment:
Hooray! The rock star continues to do awesome. I'm sure Baylee will be relieved to be home for good, but she seems to be handling things very well. You've got two great girls.
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