Nurse Shelli from Seattle called me this morning! She was very interested in hearing about Blair and answering any questions that I had. She is going to look at this link as well as the one for Zack (since he was treated there) with the surgeons and see what they can come up with. Obviously they don't want us to come all the way out there if we can get the same kind of treatment closer.
I also have some reservations about St. Louis "trying" what they did on Zack. But, I do feel comfortable with having the Occupational Therapist at least look at it and talk back and forth with the OT in Seattle. Plus, if it's something new for them and works then I'm all for it! I want it to be something that they would try on other kids as well!
Hugs - Tiffany