Well, I've been trying to get motivated to get some stuff done around the house. Our closets desperately need to be cleaned out. Since I've been sick I haven't felt like doing anything... laundry included. So, I think I will get through the 15 loads of laundry that needs to be done and in between get to the closets. I don't know if I'm just wanting to do some early Spring cleaning or what. I do know that I'm SO ready for Spring weather. These 30 degree days are depressing! We can't really go outside and play and it just stinks to be stuck inside.
Since Therapy yesterday I've been doing the excercises Juli showed me on Blair to help her eat chunkier foods. This morning she did much better and got through 1/2 of a jar of 3rd foods. It was Oatmeal with Apples and Cinnamon. She really liked it and didn't start gagging until 1/2 way through the jar. Then, after her nap we tried fruit puffs again. She did GREAT and didn't gag at all. She probably ate 20 of them! :) So, that's exciting! She doesn't really like me excercising her mouth, but it does help so I keep doing it!
We don't really have anything planned this week. I know this weekend we are going bowling. Baylee's favorite thing to do these days! That is also why we are having a bowling birthday party for her in March. She is super excited about it!
I think that's about it for now!
Hugs - Tiff
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Omphalocele and PPH/RVH
This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
3 comments:
Be easy on yourself; being sick sucks--hope you get to feeling better soon. I think the bowling party is such a cool idea--we took Mia for the first time a week ago and she loved it! I'd give her that party too except that I'm not all about watching over a bunch of hyper-active 4 year olds anywhere much less a bowling alley.
I hope you start to feel better soon. I do laundry all the time - at least it keeps me warm! ;-)
isn't it amazing how fast the laundry adds up? It's like laundry fairies or something more sinister like laundry trolls....
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