Well, Baylee had her EKG today and we will get the results of that either tomorrow or the next day. I'm still waiting to hear back from the Pediatrician about who they are referring us to for the EEG.
Blair had her eye teeth pop through today. So, all 4 top teeth are through. She hasn't really been all that fussy either. She is still doing great with milk and sippy cups. She's even holding her cups now. It's so funny because as soon as you touch her cup she will let go!
Tomorrow we are watching my friends little girl again. Baylee has school, dance class and t-ball practice tomorrow. Hopefully she will take some kind of a nap!
Hugs - Tiff
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Praying for Ryan
Praying for Karsie
My Peepers!
Omphalocele and PPH/RVH
This page is for Baylee and Blair. Blair was born with a Giant Omphalocele on April 7th, 2008. She spent 7 weeks in the NICU at AR Children's. Amazed by the Dr's she came home at the end of May only on a little bit of O2 and no other medications. She was also diagnosed with a 3mm VSD of her heart. That has since CLOSED COMPLETELY and will not require surgery. Recently we found out that she was born with her heart on the right side of her chest. She had surgery on Aug. 20th without expanders. The Dr's were able to do a closure surgery with a bit of alloderm pulling the muscles together. We will be in St. Louis for a few weeks while she recovers.
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
Baylee is an energetic 4 year old. She loves swimming, her babydolls, playing outside and most of all her little Sissy! She is our little princess and we have been amazed at how well she has reacted to her little Sissy. She is WONDERFUL to her little sissy and loves her so much!
She was diagnosed on April 13th with a Right Ventricular Hypertrophy due to Primary Pulmonary Hypertension. In July we traveled to Boston to see a Hypertension Specialist. I LOVE this Dr! She is wonderful and answered all of my questions. She will have another Heart Cath on Dec. 1st to check the pressures in her heart again. She is now sleeping with a bit of oxygen just as a precautionary.
I hope that everyone enjoy's reading about our lives and if you learn something in the process that's even better!
6 comments:
Love the new look around here!
Sounds like you have a busy day ahead! :-)
You sound busy as ever! :)
The new background is SO cute!
Oh, my goodness, I am so out of the loop and I am so sorry I have not checked in on you in such a long time! I'm glad things are going a little better now, but what a time you've been having! Love the pictures and hope everyone is feeling okay and doing great. Take care.
OMgoodness I am just catching up with you and I am in awe of how calmly you handle everything! You have such grace. I complain when my child has a cold, and here you are, calmly dealing with hospitalizations and seizures, taking it all in stride and staying so positive. You are really an inspiration. I hope all is well soon.
BIG HUGS BACKATCHA
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